Why


Lark was diagnosed with PFFD before even being born. Other blogs following amazing children with PFFD gave me hope and insight when we first found out. I thought I would try one out for myself. Not only as a way to share Lark's progress but also to possibly be helpful for anyone else dealing with the same thing.

Here is Lark's story ...

Wednesday, March 7, 2012

What is PFFD?

The short version:

Proximal femoral focal deficiency (PFFD) is a rare, non-hereditary birth defect that affects the pelvis, particularly the hip bone, and the proximal femur. The disorder may affect one side or both, with the hip being deformed and the leg shortened.  (Thank you Wikipedia) 

In Lark's case the PFFD effects her left femur and hip.

2 comments:

  1. Hello. My name is Margaret and I live in Ontario, Canada. I stumbled upon your blog, while looking for a definition of PFFD. I was born with PFFD in 1963. I'm now 49. I studied at university I now work, and have two boys and a wonderful active life. You blog just made me smile. Lark is precious. I must show my parents your blog - it will make them smile too.

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    Replies
    1. Hi Margaret, thanks so much for leaving such a sweet comment! Are there any suggestions you have that would help in raising a girl with PFFD?

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