Why


Lark was diagnosed with PFFD before even being born. Other blogs following amazing children with PFFD gave me hope and insight when we first found out. I thought I would try one out for myself. Not only as a way to share Lark's progress but also to possibly be helpful for anyone else dealing with the same thing.

Here is Lark's story ...

Thursday, March 15, 2012

Consuming

It is safe to say that the weeks following Lark's diagnosis I completely consumed myself with spending any and all extra time I had on the computer researching PFFD. There are still days where I let myself be consumed by it and I'm sure there will be many, many more to come. I am thankful that we learned about Lark's PFFD while she was still in utero. I think it would have been very hard to not be prepared for it though at the same time it gave us months to think about it. At times I think the fear of the unknown took over the excitement of being pregnant. I found and still find so much comfort in other people's blogs. To see completely normal, happy and beautiful children thriving with this difference makes things so much easier. Plus the strength of the parents is inspiring. From other's stories we can kind of get an idea of what Lark's path might look like though there are several ways it might go. Hopefully over time that path will become clear to us.

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