Why


Lark was diagnosed with PFFD before even being born. Other blogs following amazing children with PFFD gave me hope and insight when we first found out. I thought I would try one out for myself. Not only as a way to share Lark's progress but also to possibly be helpful for anyone else dealing with the same thing.

Here is Lark's story ...

Wednesday, April 25, 2012

Scottish Rite

So a couple of weeks ago we packed Lark up and headed to Dallas for our first visit with Scottish Rite. Scottish Rite is a children's hospital specializing in pediatric orthopedics. Check them out here. What a cool place! The staff and doctors were all very nice and the process was very simple. First off Lark had to get an x-ray done. Afterwards we meet with the orthopedic surgeon in charge of prosthesis. No matter what path we take Lark will have to use a prosthesis to learn how to walk. Most likely a Equinus Prosthesis. Larks's foot would just slip into a base and then a prosthetic foot is attached at the end of the prosthesis. After talking with him we went over and talked to another orthopedic surgeon whom specializes in limb lengthening. Overall they feel like Lark is not a good candidate for limb lengthening because of how large her discrepancy is. They suggest prosthesis management instead. More specifically a Symes Amputation with Knee Fusion. A Symes Amputation consist of removing her foot but leaving the heel pad there and then fusing the knee bones together to create one long bone. Which is a lot to think about. The good thing is we have some time before we have to make any decisions. We will visit Scottish Rite again during the next 6 months to discuss Lark's first prosthesis. 

We are also set to visit both the International Center for Limb Lengthening in Baltimore and the Paley Advanced Limb Lengthening Institute in Florida this summer to get their feedback. I'm interested to see what the next months of appointments hold for us. I just want to make sure we get all the information that is available to us so that we can make the best choices for Lark.